||5R21CA222936-02 Interpret this number
||Rbhs -Cancer Institute Of New Jersey
||Improving Transition Readiness in Adolescent and Young Adult (AYA) Survivors of Childhood Cancer
Adolescent and young adult (AYA) survivors of pediatric cancers require lifelong “risk-based” follow-up
care tailored to their treatment exposures, including routine medical appointments, monitoring for late effects,
and regular cancer screenings. In addition to normal developmental tasks of pursuing higher education,
initiating careers, living independently, and forming intimate relationships, AYA survivors must also assume
primary responsibility for the management of their long-term follow-up care. This transition from parent-guided
management to self-management of medical care can be challenging for the AYA and his or her family,
resulting in lapses in care and potentially preventable health problems. Only a minority of young adult cancer
survivors obtain risk-based follow-up care; one major contributor to non-adherence is a lack of preparation or
low “transition readiness” to transfer to adult-oriented care.
The goal of this project is to pilot test a self-management + peer mentoring intervention to improve AYA
cancer survivor transition readiness. Based on the Social-Ecological Model of AYA Readiness for Transition
and interviews with AYA cancer survivors, parents, and providers, we created the content for the self-
management intervention that focuses on overcoming survivor barriers to self-management such as lack of
knowledge, low self-efficacy, and poor communication skills. Peer mentors are a novel component of the
intervention and serve to provide credible specialized information, empathy, and advice, capitalizing on shared
experience and meeting a psychosocial need for AYA survivors. We conducted a small pilot with AYA
survivors to gain feedback on the content and infrastructure of the peer mentor component. AYA survivors
found the content, online delivery, and peer mentor contact acceptable, but highlighted a need for engaging
online tools. This project will utilize AYA survivor input to build the online intervention with interactive tools such
as personalized feedback, animated videos, and games to encourage engagement with the intervention. Then
we will conduct a randomized pilot test of the intervention to evaluate feasibility, acceptance, and preliminary
effects on AYA transition readiness.
Technology-Based Peer Support Interventions for Adolescents with Chronic Illness: A Systematic Review.
, Pan S.
, Viola A.
, Rademaker Q.
, Devine K.A.
Journal of clinical psychology in medical settings, 2022 Dec; 29(4), p. 911-942.