||5R21CA215557-02 Interpret this number
||Medical University Of South Carolina
||A Mobile-Support Program to Facilitate Nutritional Caregiving in Head and Neck Cancer
Head and neck cancer survivors face demanding and distressing nutritional challenges and their caregivers
often feel unprepared to carry out nutritional support efforts at home after treatment. This study builds on our
team's previous research in which we developed a survivorship needs assessment planning tool to assess the
specialized needs of head and neck cancer survivors and caregivers and generate personalized care plans.
The system has demonstrated high acceptability and feasibility and has promising potential for expansion to
support caregivers' nutritional support efforts beyond the clinic by capitalizing on mobile technology to follow
caregivers as they transition home in the high-need recovery period.
In the current mixed methods research, working with survivors, caregivers and health care providers, we will
develop and pilot-test a nutrition-focused mobile support system (mSupport) for head and neck cancer dyads
as they manage nutritional needs and concerns during the initial recovery period. The specific aims of this R21
are to 1) develop and pretest a mobile nutritional support system (needs assessment tool, tailored care plan
and mobile messaging program) for head and neck cancer caregivers at the end of treatment and 2) pilot-test
the mobile support system in head and neck cancer dyads. We will use dyadic interviews with head and neck
cancer survivors and their caregivers (N=15 dyads) and surveys with a national panel of oncology dieticians
(N=35) to characterize nutritional support needs and develop the mSupport system. After finalizing the system
with our Clinical Advisory Board, we will pilot the finalized system in the clinic with 30 survivor-caregiver dyads
(N=60 participants) and provide bi-weekly caregiver mobile monitoring and support (encouragement,
reminders and tips delivered through messaging and peer videos) for 4 weeks, tracking feasibility, acceptability
and short-term outcomes for a future randomized controlled trial.
This research is novel in its dyadic approach to survivorship care planning, its focus on nutritional wellness to
accelerate dyads' readiness to transition from treatment to the post-treatment period and its extension of a
scalable mobile health support system to reach caregivers. Results will lead to a large-scale multi-site trial to
improve head and neck cancer survivorship care.