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Grant Details

Grant Number: 5R01CA098486-05 Interpret this number
Primary Investigator: Lee, Stephanie
Organization: Fred Hutchinson Cancer Research Center
Project Title: Enhancing Doctor-Patient Communication
Fiscal Year: 2006


DESCRIPTION (provided by applicant): Most cancer patients say they want all available information about their medical conditions. Yet studies measuring patient knowledge show striking deficiencies in basic understanding, especially about prognostic issues such as rates of treatment success and cure. The proposed study is designed to answer a number of key questions surrounding doctor-patient communication about prognosis: (1) What prognostic information do patients desire; (2) What physician-patient communication strategies lead to more accurate prognostic expectations by patients? and (3) What is the impact on patients of fully understanding their prognoses? Results will help us to understand the best ways of communicating prognostic information to patients, and further will determine whether an accurate understanding of prognosis is helpful or harmful to patients' psychological status. This project will focus on patients with hematologic malignancies such as leukemia, lymphoma, multiple myeloma, and myelodysplastic syndrome since little is known about communication with this patient population. In addition, this population poses different clinical issues than the adjuvant or palliative setting in which most prior work has concentrated. Two hundred and sixty-four patients will be interviewed prior to their first oncology visits, their consultations will be audio-taped, and patients will be interviewed again 1-2 days afterwards and at 3 months to see how specific aspects of the consultation affected them. This study will result in a unique data set that will enable us to plan specific interventions to enhance effective and compassionate doctor-patient communication about prognosis based on empirically observed physician and patient behaviors. In addition, important baseline outcome data will be generated that will be critical for designing future intervention studies. The project works towards the overall goal of enhancing communication, improving patient understanding, and facilitating psychosocial adaptation to life-threatening illness.


Patient-hematologist discordance in perceived chance of cure in hematologic malignancies: A multicenter study.
Authors: Loh K.P. , Xu H. , Back A. , Duberstein P.R. , Gupta Mohile S. , Epstein R. , McHugh C. , Klepin H.D. , Abel G. , Lee S.J. , et al. .
Source: Cancer, 2020-03-15; 126(6), p. 1306-1314.
EPub date: 2019-12-06.
PMID: 31809566
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Advance care planning among hematopoietic cell transplant patients and bereaved caregivers.
Authors: Loggers E.T. , Lee S. , Chilson K. , Back A.L. , Block S. , Loberiza F.R. .
Source: Bone marrow transplantation, 2014 Oct; 49(10), p. 1317-22.
EPub date: 2014-07-28.
PMID: 25068417
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Physician communication styles in initial consultations for hematological cancer.
Authors: Chhabra K.R. , Pollak K.I. , Lee S.J. , Back A.L. , Goldman R.E. , Tulsky J.A. .
Source: Patient education and counseling, 2013 Dec; 93(3), p. 573-8.
EPub date: 2013-09-04.
PMID: 24035463
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Information giving and receiving in hematological malignancy consultations.
Authors: Alexander S.C. , Sullivan A.M. , Back A.L. , Tulsky J.A. , Goldman R.E. , Block S.D. , Stewart S.K. , Wilson-Genderson M. , Lee S.J. .
Source: Psycho-oncology, 2012 Mar; 21(3), p. 297-306.
EPub date: 2011-02-04.
PMID: 21294221
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Coping styles, health status and advance care planning in patients with hematologic malignancies.
Authors: Loberiza F.R. , Swore-Fletcher B.A. , Block S.D. , Back A.L. , Goldman R.E. , Tulsky J.A. , Lee S.J. .
Source: Leukemia & lymphoma, 2011 Dec; 52(12), p. 2342-8.
EPub date: 2011-08-18.
PMID: 21851220
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Patients' reflections on communication in the second-opinion hematology-oncology consultation.
Authors: Goldman R.E. , Sullivan A. , Back A.L. , Alexander S.C. , Matsuyama R.K. , Lee S.J. .
Source: Patient education and counseling, 2009 Jul; 76(1), p. 44-50.
EPub date: 2009-01-09.
PMID: 19135824
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"What concerns me is..." Expression of emotion by advanced cancer patients during outpatient visits.
Authors: Anderson W.G. , Alexander S.C. , Rodriguez K.L. , Jeffreys A.S. , Olsen M.K. , Pollak K.I. , Tulsky J.A. , Arnold R.M. .
Source: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2008 Jul; 16(7), p. 803-11.
EPub date: 2007-10-25.
PMID: 17960430
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