DESCRIPTION: (Applicant's Description) The Northwest Cancer Genetics
Network (NWCGN) - proposed in response to the Cancer Genetics Network (RFA
#97004) - will be a resource for studies of the genetic basis of cancer
susceptibility, the appropriate use of this information in medical practice,
and the impact of knowledge of cancer genetics on public health. To
accomplish these aims, we will 1) participate in the development and
management of the CGN and 2) will contribute to the CGN a register of
individuals interested in cancer screening and/or at defined levels of risk
for cancer. The primary focus will be on individuals interested in genetic
testing identified from the area genetic clinics (including an existing
network in which we participate), via physicians and as self-referrals. In
order to ensure representative and efficient recruitment of high-risk
individuals, a population-based registry will be established for probands
with diagnoses of specific cancers, their family members, and a population
sample. All participants will complete a structured interview on family
history of cancer, medical history, and other factors thought to influence
cancer risk. All participants will be provided individualized risk
information. The NWCGN brings to the CGN significant expertise in clinical
genetics, molecular genetics, molecular biology, epidemiology,
biostatistics, economics, ethics, counseling, primary care and psychology.
This mix of disciplines is essential to support the infrastructure required
to collect crucial data on individuals seeking genetic testing, as well as
those with known family histories.
Error Notice
The database may currently be offline for maintenance and should be operational soon. If not, we have been notified of this error and will be reviewing it shortly.
We apologize for the inconvenience.
- The DCCPS Team.
