Grant Number:	3U01CA246659-03S1 Interpret this number
Primary Investigator:	Baker, Kevin
Organization:	Fred Hutchinson Cancer Center
Project Title:	Improving Survivorship Care for Adolescents and Young Adults: a Mixed Methods Study of Alignment with the National Standards for Survivorship Care
Fiscal Year:	2024

PROJECT SUMMARY/ABSTRACT This application is being submitted in response to the Notice of Special Interest (NOSI) identified as "NOT-CA- 24-041”. This proposal aims to investigate the level of alignment between the survivorship services provided by the Fred Hutchinson Cancer Center (FHCC) and the National Standards for Survivorship Care, and to assess the current status of survivorship care at FHCC for patients diagnosed with cancer as adolescents or young adults (AYA, ages 15-39 yrs). We will determine the utilization rates and barriers or facilitators to receiving survivorship care among AYA survivors who were eligible for the parent grant (U01 CA246659). The parent grant focuses on AYA survivors and tests the INSPIRE–Adolescent and Young Adult program, which incorporates a mobile app/website and telehealth care to reduce distress and improve healthcare adherence among AYA survivors across five US centers. The proposed supplement aims to expand the assessment of survivorship care beyond distress and adherence, evaluating survivorship care comprehensively. This proposal includes a mixed-methods design. The first aim will compare the alignment of current survivorship services with the National Standards for Cancer Survivorship Care. The second aim will examine utilization rates of the Survivorship Clinic and supportive care services for those AYA survivors who were screened and determined to be eligible to participate in the parent grant. The third aim will approach a subset of AYA survivors who have agreed to further contact (95% of them have agreed) to perform a qualitative study using semi-structured interviews to assess barriers and facilitators to attending the Survivorship Clinic and/or receipt of survivorship focused supportive care services. This data generated from this administrative supplement will offer the opportunity to comprehensively examine the current state of survivorship care service being provided to a generally underserved population of cancer survivors—those diagnosed and treated as AYAs. Gaps in meeting national standards and barriers identified during the qualitative interviews will be brought forth to Cancer Center leadership so that efforts to enhance care delivery can be implemented with a goal that all AYA survivors have the opportunity to receive care that is concordant with national standards so that that their late and long-term physical, financial, social and emotional needs can be met, and strategies can be implemented to reduce barriers. Additionally, the findings will be disseminated to advance survivorship care practices at other cancer centers.





None. See parent grant details.